11/29/11 AJ opens his mouth, trys to communicate, and starts breathing through his mouth. His entire body relaxed. Up until now he had been clamped down and refused to open his mouth. Some say it may of been a way to protect himself. He had so many tubes shoved down his throat and then the trauma he suffered at the nursing home when the oral care brush broke in his mouth. He was refusing to let anyone into his mouth and all breaths of life were from his throat through the trach tube. The only way we could brush his teeth was to sneak a mouth guard into his mouth when he yawned, otherwise he would bite down on anything put into his mouth and not open back up.
11/30/11 He is trying to communicate, he moves his lips but no words would come out. He answers questions correctly with a subtle nod of his head for no. He tries the blinking, once for yes, twice for no, but we all get confused on this one...is it once for yes or is it twice.....the thing is, is that he is trying to communicate and says "hi" to his sister.
12/10/11 Christmas at the Hacienda, he lost so much weight. The doctor let me take out his trach....I am so grateful that he is alive this Christmas.
I had to work over the holidays, but I knew he was in good hands at the Hacienda. When I had heard that all these police in uniform had showed up to pamper the residents with manicures and toys, I had to laugh at the thought of what might be going through AJ's mind when all the police arrived....he probably thought he was being arrested...lol
12/10/12 Out of the blue he started counting on his fingers and WE GOT A THUMBS UP....the really cool thing about this, is that he is trying to figure out how to get his thumb up. His thumb muscle is contracted and has no movement.
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